The values of family and social sources resilience of disability children: a phenomenology study

Sigit Muryono; Kadek Suranata

doi:10.29210/30032740000

The values of family and social sources resilience of disability children: a phenomenology study

Sigit Muryono

⁽¹⁾, Kadek Suranata ⁽²⁾,
(1) Universitas Muhammadiyah Prof. Dr. Hamka, Jakarta

Indonesia
(2) Universitas Pendidikan Ganesha, Bali

Indonesia

Corresponding Author
Copyright (c) 2023 Sigit Muryono, Kadek Suranata

DOI : https://doi.org/10.29210/30032740000

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Abstract

This study was Aimed to describe how the values of the family resilience of children with hearing loss in the Bengkala, Bali. The study of participants included the parents of children with hearing loss, and community in Bengkala, Bali, Indonesia. In this study, values are understood as a crucial concept to explain the underlying motivations of resilience attitudes and behaviors demonstrated by the members of the family of children with hearing impairment. The data analysis technique using coding that is open coding, axial coding and selective coding, There are three themes related to the values that underlie the family resilience of parents of the childrent with hearing impairment in Bengkala, the which include: (1) the value of tradition and religious; respect, commitment and acceptance of traditional cultural customs and ideas or religion given, (2) The value of the policy; the which is the value of keeping and giving happiness, prosperity with the people who Often interaction in their group and (3) the value of universalism; that is the value of understanding, appreciation, tolerance, and protection for the welfare of all people and the environment.

References

Adair, J. K. (2015). The impact of discrimination on the early schooling experiences of children from immigrant families: Washington, DC: Migration Policy Institute.

Ames, H., Glenton, C., & Lewin, S. (2019). Purposive sampling in a qualitative evidence synthesis: A worked example from a synthesis on parental perceptions of vaccination communication. BMC medical research methodology, 19(1), 1-9.

Anaby, D., Hand, C., Bradley, L., DiRezze, B., Forhan, M., DiGiacomo, A., et al. (2013). The effect of the environment on participation of children and youth with disabilities: a scoping review. Disability and rehabilitation, 35(19), 1589-1598.

Berkes, F., Folke, C., & Colding, J. (2000). Linking social and ecological systems: management practices and social mechanisms for building resilience: Cambridge University Press.

Coster, W., Law, M., Bedell, G., Khetani, M., Cousins, M., & Teplicky, R. (2012). Development of the participation and environment measure for children and youth: conceptual basis. Disability and rehabilitation, 34(3), 238-246.

Cote, M., & Nightingale, A. J. (2012). Resilience thinking meets social theory: situating social change in socio-ecological systems (SES) research. Progress in human geography, 36(4), 475-489.

Creswell, J. W. (2003). Qualitative, quantitative, and mixed methods approaches: Thousand Oaks, CA: Sage.

Dykens, E. M., Fisher, M. H., Taylor, J. L., Lambert, W., & Miodrag, N. (2014). Reducing distress in mothers of children with autism and other disabilities: a randomized trial. Pediatrics, 134(2), e454-e463.

Fine, M., & Glendinning, C. (2005). Dependence, independence or inter-dependence? Revisiting the concepts of ‘care’and ‘dependency’. Ageing & society, 25(4), 601-621.

Gall, M. D., Borg, W. R., & Gall, J. P. (1996). Educational research: An introduction: Longman Publishing.

Gibson, B. E., Secker, B., Rolfe, D., Wagner, F., Parke, B., & Mistry, B. (2012). Disability and dignity-enabling home environments. Social Science & Medicine, 74(2), 211-219.

Girli, A., Sarı, H. Y., Kırkım, G., & Narin, S. (2016). University students’ attitudes towards disability and their views on discrimination. International Journal of Developmental Disabilities, 62(2), 98-107.

Gunnestad, A., & Thwala, S. l. (2011). Resilience and religion in children and youth in Southern Africa. International Journal of Children's Spirituality, 16(2), 169-185.

Harry, B. (2002). Trends and issues in serving culturally diverse families of children with disabilities. The Journal of special education, 36(3), 132-140.

Hart, R. A. (2013). Children's participation: The theory and practice of involving young citizens in community development and environmental care: Routledge.

Heiman, T. (2002). Parents of children with disabilities: Resilience, coping, and future expectations. Journal of developmental and physical disabilities, 14, 159-171.

McConnell, D., & Savage, A. (2015). Stress and resilience among families caring for children with intellectual disability: Expanding the research agenda. Current developmental disorders reports, 2, 100-109.

Mears, C. L. (2012). In-depth interviews. Research methods and methodologies in education, 19, 170-176.

Peer, J. W., & Hillman, S. B. (2014). Stress and resilience for parents of children with intellectual and developmental disabilities: A review of key factors and recommendations for practitioners. Journal of policy and practice in intellectual disabilities, 11(2), 92-98.

Raghavan, R. (2015). Resilience of children and young people with intellectual disabilities. Paper presented at the Journal of Intellectual Disability Research.

Rai, N., & Thapa, B. (2015). A study on purposive sampling method in research. Kathmandu: Kathmandu School of Law, 5.

Resch, J. A., Mireles, G., Benz, M. R., Grenwelge, C., Peterson, R., & Zhang, D. (2010). Giving parents a voice: A qualitative study of the challenges experienced by parents of children with disabilities. Rehabilitation psychology, 55(2), 139.

Scanlan, C. L. (2020). Preparing for the unanticipated: Challenges in conducting semi-structured, in-depth interviews: SAGE Publications Limited.

Schwartz, S. H. (2012). An overview of the Schwartz theory of basic values. Online readings in Psychology and Culture, 2(1), 2307-0919.1116.

Sokolowski, R. (2017). Moral action: A phenomenological study: CUA Press.

Spencer, P. E., Erting, C. J., & Marschark, M. (1999). The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans: Psychology Press.

Suranata, K., Atmoko, A., Rangka, I. B., & Ifdil, I. (2017). Risks and resilience of students with hearing impairment in an inclusive school at Bengkala, Bali, Indonesia. Specialusis Ugdymas, 2(37), 165-214.

Walsh, F. (2016). Family resilience: A developmental systems framework. European journal of developmental psychology, 13(3), 313-324.

Wright, M. O. D., & Masten, A. S. (2005). Resilience processes in development: Fostering positive adaptation in the context of adversity. Handbook of resilience in children, 17-37.